Waiting to hear if I'll stay on the trial or not. Interestingly- mixed feelings but I trust the team at WGH enough to run with whatever decision they/we make.
Meantime leaking solar pipes now fixed and all up and running except for one thing- no sun!! Also, now have my electronic (bag)pipes so I can pick up playing the old tunes again. As soon as I got them this morning I was playing them- amazing( isn't it, Grace(a joke?)) how the tunes can stay in your fingers but if you asked me to write the music or whistle a tune I probably couldn't do it. First tune I had a go at was " Invisible Dram" ( dram being Scots for a measure of whisky)- I wrote this tune for Elspeth's dad- every year we gave him a bottle of whisky for his xmas but we never saw any of it!! Hence the Invisible Dram!
Myeloma UK
Myeloma UK provides information and support to all those affected by myeloma and aims to improve treatment and care through education, research, campaigning and awareness. |
About Me
- Stewart
- I was diagnosed with multiple myeloma in 2003 and since then I have had six regimes of chemotherapy, a stem cell transplant; a significant pulmonary embolism and two dvts, have become diabetic and had a plate inserted in each arm and a pin in my leg in February 2007. I was included in the Lenalidomide Study at the Western General Hospital in Edinburgh. After 6 months of no treatment I went on a chemo regime involving prednisolone, melphalan and thalidomide. I'm now off that but my paraprotein is now rising quite quickly
2 comments:
Hi Stewart, have just updated myself with your recent blog(s). When faced with such a difficult time your positive outlook is inspiring! Don't give up blogging!
ps. how's Elspeth's wormery coming along? all that sunshine on sunday should have your solar pipes toasting!!
Your story is interesting to me Stewart as I wait for the chance to take part in a Revlimid trial here in Australia. I was stuck by your comment that uncertainity is the only certainty about this business of living with myeloma.
Yes and again yes.
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