News today- would you believe that my paraprotein is back down to 9 from 11. So with the treatment it was going up and after withdrawing from the trial its gone down again. Roller coaster time again. So issue is- does this merit staying on the trial? Will I be allowed to in terms of trial protocols? I think I did say the most annoying thing about myeloma is the uncertainty it introduces into life. I've had to accomodate this by realising that the most certain thing about myeloma is the uncertainty! I'll find out on Monday what plan of action is to be and meantime will go and lie down in a dark room and recover my energies!
But the really important news is that my solar panel is working well- the collector reached 74 degrees yesetrday and the hot water cylinder went up to 64 degrees. And all this for no cost ( I'm a Scot!). Next plan of action is to get back to playing pipe music- I gave up when my left arm was plated- too much pressure on a vulnerable elbow. But I'll buy eletronic pipes again( in fact they were ordered two hours ago).
Myeloma UK
Myeloma UK provides information and support to all those affected by myeloma and aims to improve treatment and care through education, research, campaigning and awareness. |
About Me
- Stewart
- I was diagnosed with multiple myeloma in 2003 and since then I have had six regimes of chemotherapy, a stem cell transplant; a significant pulmonary embolism and two dvts, have become diabetic and had a plate inserted in each arm and a pin in my leg in February 2007. I was included in the Lenalidomide Study at the Western General Hospital in Edinburgh. After 6 months of no treatment I went on a chemo regime involving prednisolone, melphalan and thalidomide. I'm now off that but my paraprotein is now rising quite quickly
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