Bit of a problem- I've come out in spots! Over my arms, body and legs. This actually happened at the corresponding stage of my last cycle but we put it down to a possible reaction to antibiotics. But I'm not on antibiotics this time and the spots are more pervasive than the last time- any suggestions in a brown paper envelope please!!
It also puts me in a spot as I'm meant to be giving the patient experience to a group of MAGIC ( Myeloma Advice and Guidance in the Community) Nurses in Glasgow on Friday. Fortunately I have a hospital appointment tomorrow so we can explore it there. In terms of going to speak to the MAGIC Nurses I did wonder how many would stay in the room when I went in. According to the nurses at Ward 5 at the WGH they all try to go for coffee when I come in!! ( they all know how difficult I am to canulate).
In general though I have to say that I am getting a bit tired and it does appear to be taking longer for me to get over the effects of the steroids than previously. It may also of course be the case that the lenalidomide is making me tired as fatigue is of course one of the side effects. So- always difficult to separate out the effects of the lenalidomide, steroids and my diabetes.
Myeloma UK
Myeloma UK provides information and support to all those affected by myeloma and aims to improve treatment and care through education, research, campaigning and awareness. |
About Me
- Stewart
- I was diagnosed with multiple myeloma in 2003 and since then I have had six regimes of chemotherapy, a stem cell transplant; a significant pulmonary embolism and two dvts, have become diabetic and had a plate inserted in each arm and a pin in my leg in February 2007. I was included in the Lenalidomide Study at the Western General Hospital in Edinburgh. After 6 months of no treatment I went on a chemo regime involving prednisolone, melphalan and thalidomide. I'm now off that but my paraprotein is now rising quite quickly
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