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Myeloma UK
Myeloma UK provides information and support to all those affected by myeloma and aims to improve treatment and care through education, research, campaigning and awareness. |
About Me
- Stewart
- I was diagnosed with multiple myeloma in 2003 and since then I have had six regimes of chemotherapy, a stem cell transplant; a significant pulmonary embolism and two dvts, have become diabetic and had a plate inserted in each arm and a pin in my leg in February 2007. I was included in the Lenalidomide Study at the Western General Hospital in Edinburgh. After 6 months of no treatment I went on a chemo regime involving prednisolone, melphalan and thalidomide. I'm now off that but my paraprotein is now rising quite quickly
2 comments:
I'm so glad I've discovered your blog. My husband was diagnosed with indolent MM about 5 years ago. He is mildly anaemic and has paraprotein fluctuating around 30/40 level. His white cell count is decreasing and he has lots of infections. We have been unable to glean any information from the hospital as to likely progression, and even the infections which have required hospitalisation on 2 occassions have been dismissed as irrelevant. I know every patient is different but it has been so helpful to have your account to read.
My best wishes to you and your family. I love St Ives too, went there in October- brilliant sunshine.
Hi i have just been diagnosed with MM and am scared. your blog is a ray of light i have nt started treatment yet but they are talking about thalidomide and steroids, i cant understand why there are all different treatments but am sure through time i will figure it out.
thanks for your list it shows that there is still time to do things
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